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Rank: Newbie  Groups: Registered
Joined: 5/23/2010 Posts: 7
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Hi Members, I am also new to this site had RA for 18months not coping very well and im a pain in the neck!! single mom that used to horse ride and run round theme parks with my son well how times have changed, i cant even wear a pair of heeled shoes anymore! ahhhh joined NRAS to try a get more positive and some of you may be really suffering so im sorry, im just having a bad time at the moment got to have lung function tests now on top of everything else im just worried, hope i havent got any complications.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 263
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[rol eyes] Hiya Claire welcome ! You will get some good advice on here.Once you get your medication sorted you will be much better. I thought i was finished for the first few months. Now i am on methetrexate injections and plaquinel and i am a new women. Good luck. Kathleen Mc.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Claire A big welcome to the forum but so sorry to hear that you have RA. This is a great place to be for support and to meet all the friendly folk who frequent this lovely place. We all experience the ups and downs of diagnosis, treatments and living with RA so you are in just the right place for information, support and help with the problems that travel along with it. I am Lyn, married to Mike with four children in various stages of education. We live in Lancashire. I was diagnosed with sero-negative RA 22 years ago after the birth of my first child. Since then I feel as though I have run the gamut of medications and a number of surgical procedures. I am currently on Enbrel, Prednisolone, Naproxen and a few other bits and pieces to keep things ticking over. Have just been taken off methotrexate (wiped out my neutrophil count) so waiting to see what happens next!! So I know just where you are coming from on the 'complications' front! What medication are you on at at the moment? Sorry to hear you are having a tough time at present and believe me we all have a good moan about our inability to wear 'nice' shoes ... you are not alone! It's natural to feel that you are not coping when things get you down but in fact you are coping, you have joined NRAS. A really positive step in the right direction as there's always someone about who will listen and respond and even if we don't have all the answers usually someone has experienced something similar. Looking forward to getting to know you better Claire. Hope things improve very soon, Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi Claire welcome to the forum , im Sophie 35 im a single mum too , i have a son Jonny whose 5 , ive had Ra for 15 years and i also have Lupus  , i only joined last year but wish id joined years ago , know what you mean about the shoes ! Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hello Claire,
So sorry you have RA but glad you found us - this forum is like an extra special family with real understanding - & is SO helpful,
I'm Liz 40(only just!), married to Paul with two girls Sophie 16 and Jess 13,
Hmmm, I remember heels.... but that was somewhere way way back in the long distant past,
Comfort is so much more important anyway xxxxx
Hope your tests bring some answers and that you are well supported by medical team,
please keep posting, Looking forward to getting to know you and supporting each other
Take care,
love ~ Liz xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Claire Welcome to the club no-one wants to join and sorry you are having a bad time. This forum has been a lifesaver for many of us - you will receive support, encouragement and also be able to have some fun! I'm 66 (almost 67  ) and married to my lovely Steve. We have one daughter, s-i-l and 2 super grandchildren. I look forward to getting to know you. Love Jeanxxx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Clarie
Welcome to the Forum. You will great great advice from lots of diff people ,I joined last
month and I have found great advice.
I am Rose from Somerset, aged 56 with 2 grown up children and 1 grand daughter 6. I have
had RA for 18 months and yes I also get upset as I cannot wear smart shoes. Now in Clarkes 'air'and
sandels from the Shuropody shop. However I now spend money on handbags, and am naughty
with them .
Welcome , speak soon
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Claire,
Welcome to the forum!
I am 60 and have had RA for 9 years. Married to Ian and we have one 21year old daughter just taking her final uni exams.
I definitely mourn the fact that I can't wear fashionable shoes, especially with a graduation ceremony coming up!
Looking forward to getting to know you.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hello Claire welcome to the forum Im 38 wel for 1 more monht. married almost 10 yrs,no kids yet but on plans to start try this year. RA since 17,lupus,fibromyaliga more recenttly. what medication are you on,have you seen a occupatinol therapist for hands exericses,treatment,care and protection of joints can ask gp or rheumy nurse if have one. nice see you joined,sorry see you have RA. take care Melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Claire, just joining in the welcome. I'm Barbara, 56 married to Roy, two grown sons, one grown daughter and one 17yr old daughter doing A levels. I was diagnosed last July, on methotrexate, hydroxychloroquine, and sulfasalazine. I work full time with young children, so very busy!!! Which meds are you on? You are coping!!! if not, you wouldnt have thought to join us!! As everyone has said, its a very friendly site and full of information and support, sorry you need to be here, but post often and let us know how you are doing x  BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hi Claire,
I'm Anne 50 years old married with two teenage boys I am also a foster carer and have a young lad placed with me who we think the world of.
I was diagnosed three weeks ago. Since joing this site I no longer feel alone my husband says how much it has cheered me up and asks if I've spoken to my new mates today.
Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Claire,
I'm Lorna, I am sorry you have RA,it can be hell until you get sorted out on the correct medication. I've had it for almost 3 years now, was really ill in the beginning but I am much better now. I'm on MTX and hydrox and folic acid. Look forward and try to be positive. Take care thinking about you Lorna xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Claire and welcome to the forum, you will find lots of support and ideas. I miss wearing lovely shoes but because I can't walk in them I've taken to taking a pair out with me and putting them on when I'm sitting, daft I know but it's just that they finish your outfit. I sometimes just put them on at home and look at them. I'm Glenys, RA over ten years,married to Mick, we have two grown up daughters and three lovely grandchildren.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hello Claire and a big welcome to the forum. I`m Kathleen, married to Nick, two grown-up sons & two gorgeous grandsons. Try not to worry too much about the Lung Function tests - I`ve had these twice in the 4.5 years since I was diagnosed. Are you taking methotrexate? Keep posting, Kathleen x
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Rank: Advanced Member
Groups: Registered
Joined: 5/18/2010
Posts: 34
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Hi Claire
I only joined this site very recently like Annie B and can confirm tha it is very informative and friendly. It does help you to feel more positive. I also was a high heel fan,but have been relegated to flatties. If I am going to anything where you have to look groomed I take some kitten heels for the grand entry and then slip into flatties as soon as I can. People only notice at the beginning. The rest of the time I wear trainers,which as you know are dead glamorous. Ho hum!
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 96 Location: Buckinghamshire
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Hi Claire and welcome to the forum. Sorry to hear you have RA though - I'm 33 and was diagnosed about 20 months ago just after the birth of my son, I also have a nearly 5 year old daughter. I'm on triple combination DMARD therapy (Methotrexate, Sulfasalazine and Hydroxychloroquine) as well as steroids and anti-inflammatories.
It's tough having RA and being a Mum - I think the tiredness is probably the biggest thing for me! Hope your medication gives you some relief soon.
Ju x
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Rank: Advanced Member  Groups: Registered
Joined: 12/8/2009 Posts: 230 Location: Leicester
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Hi Claire Welcome to the forum....  I'm Helly, 35yrs old, married, no children and currently studying for a degree in health & social care at Open University. I've had juvenile rheumatoid arthritis since I was 2, which then went into remission when I was 12 thanks to methotrextate and deflazacort steroids. Unfortunately it became active again last September and I'm now on hydroxychloroquine, etodolac and have quarterly steroid injections. Look forward to seeing more of your posts Helly x Celebrating 10yrs of National Rheumatoid Arthritis Society Doing a Tandem Skydive - May 2011 - All Sponsorship Welcome - www.justgiving.com/helencopeland Read my blog - Helly Copeland
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Claire
Sorry to hear things not too good at the moment, it is hard in the early days to get the meds right sometimes. I m still trying to get on with leflunomide together with other bits and bobs and reducing steroids. I think they often do lung function as standard just to check out your lungs, I can t take methotrexate due to bit of a problem with mine.
From my experiences the GP s , consultants don t akways give you the advice we all need, for example I ve had really bad hands and wrists and I had to ask my GP to refer me to an occupational therapist at the hospital for wrist splints I ve only had them about a week and wouldn t be without them now!
Keep in touch with us, we really do understand how you feel.
Julia x
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Rank: Newbie
Groups: Registered
Joined: 4/28/2010
Posts: 7
Location: Ipswich
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Hi Claire, welcome. I am so sorry to hear you are feeling bad - it is such an awful disease. I am 36 with a daughters of 3 and 7. The tiredness with the children and work makes things so hard - I really do understand. What meds are you taking? I am on sulphazaline and entodolac but soon to start mtx which I pray will make me feel much better. I find this forum so helpful - people truly understand and sympathise, and you realise you're not alone.
Take care x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 585
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Hi Claire
I am 49 with one special daughter
I have had RA for 14 years I also have MS for the past 3 years (I know I am greedy)
sorry to read you are a bit down at the moment I think if we are all honest we some-times feel down
that is why it is a great idea to come on here you will have the lift you need
looking forward to getting to know you better
take care
Mary L
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